The Ugo Edward-Dibiana Down Syndrome Foundation commemorates International Down Syndrome Day, emphasizing the need for a society that encourages inclusivity, safety, and well-being for all individuals, irrespective of their conditions.
The foundation revealed that children with Down Syndrome and other disabilities in Nigeria continue to encounter significant obstacles, including discriminatory practices and insufficient access to essential services such as healthcare, education, and social resources, in spite of the Prohibition Against Discrimination of People with Disabilities Act.
In a statement issued in Abuja on March 21, Co-founder Mrs. Duma Edward-Dibiana stressed that cultivating a culture of acceptance and understanding is pivotal to ensuring every individual feels valued and empowered to reach their full potential.
The International Down Syndrome Day is observed annually on March 21, with the aim of advocating for a more inclusive society that acknowledges and accepts individuals with Down Syndrome, who continue to face societal prejudices worldwide.
Down syndrome is a genetic condition that occurs when an individual has an extra copy of chromosome 21, leading to intellectual disability, delayed speech and language development, and distinct physical characteristics. It’s not a disease, but rather a chromosomal variation that affects physical and cognitive development.
The theme of this year’s Down Syndrome Day is: ‘Together Against Loneliness’. Reflecting on the theme in her statement, Mrs. Edward-Dibiana, emphasized, “Individuals with Down Syndrome are integral, contributing members of our communities, sharing roles as neighbors, classmates, and colleagues. Despite this, many face isolation due to societal reluctance to embrace inclusivity, often rooted in cultural, religious, or social prejudices.
”The refusal to unconditionally accept individuals with this kind of congenital biological conditions can lead to profound feelings of isolation, self-doubt, and depression. Being overlooked, underestimated, or excluded can be a painful experience, akin to being physically present yet emotionally disconnected – a poignant paradox of being surrounded by others, yet shrouded in loneliness.
“It is imperative that our society strives to create an environment that is safe, inclusive, and conducive to the well-being of all individuals, regardless of their conditions. This can be achieved by building and nurturing a culture of acceptance and understanding, where everyone feels valued and empowered to thrive.
“People with Down Syndrome, in particular, deserve to be treated with dignity and respect, and to have equal opportunities to participate in and contribute to society.
“As we reflect on the world we are creating, let us ask ourselves: what kind of legacy are we leaving for future generations? Are we perpetuating stigma, discrimination, and inequality, or are we choosing a path of empowerment, inclusion, and love?
“Let us strive to build a society that values diversity and promotes equality, where everyone has the opportunity to belong and reach their full potential. By doing so, we can break down the barriers of loneliness and create a brighter, more compassionate future for all.”
The foundation urged the government to prioritize the needs of children with disabilities by ensuring effective implementation of the Prohibition Against Discrimination of People with Disabilities Act. This law, enacted to protect the rights of individuals with disabilities, has yet to be fully enforced by government and private institutions, resulting in persistent discrimination and stigmatization. The foundation advocates for tangible measures to address this disparity and promote inclusivity.